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Tuesday, July 23, 2013

20 Miracles and Counting

The night Linc was born I was pretty out of it, but when I got settled in my room it all came rushing back at me. I started to cry but that hurt....REALLY BAD. After I had my little cry my mind was suddenly focused on all the miracles that had happened. I started a list and was deeply touched by all the miracles I found.

Miracles with Lincoln
1. Knowing well in advance about his heart defect.
2. Being so close to one of the top peds hospitals in the nation
3. Having highly qualified cardiologists nearby
4. Being induced
5. Having Sister Esplin as my nurse
6. Failing to break my water the first three times
7. Breaking my water at the hospital
8. Being in the room closest to the OR
9. Staying calm during the chaos
10. So many wonderful doctors, nurses and other staff who worked quickly
11. Having Sister Esplin stay and notice right away that Linc's heart wasn't looking good
12. Having Ryan get to the room in time to say goodbye
13. Waking up with family close
14. The NICU team who quickly stabilized Linc
15. Not crying until now
16. Being married to the most wonderful man who takes care of me
17. Seeing Linc's chubby face
18. Feeling my mom's calming presence before, during, and after
19. Remaining positive throughout this whole pregnancy
20. Placing friends in every area of this event Tanner (a Jerusalem Center friend who was an intern in the OR) Christine, Katie(Marie's friend was my nurse's aid) Holly(the BEST NICU nurse ever), Ivonne(the best recovery nurse ever)
21. Cell phones to call Holly every hour to check in on Linc

That was my list as of last night. Here are some more miracles that have happened.

22. Having the men in our family give Linc a Priesthood blessing tonight
23. Mom and Dad receiving blessings to help us get through the night
24. The Ronald McDonald Room had a bed for us last minute today
25. Feeling my Mom's presence at the blessing and know that she will be taking care of Linc tomorrow
26. Technology that allows Marie to know what is happening within seconds
27. Being able to hold Linc for hours on end here at Primary's
28. Having doctors who are confident in their ability
29. Not having any more surprises 
30. Holding Linc as much as I want 

I have no idea what tomorrow will bring. All I do know is that we have been blessed and this little man has already taught me so much. I also know that Heavenly Father is aware of our little man and prayers have brought forth so many miracles already. 

Lincoln you have a big day tomorrow. We are all praying for you.






Now not to be too serious. Your Daddy has to always make me laugh. 

I love him and am so glad he is by my side in this trial. I could not get through it without him. 
........even if he is a dork ;) 

Surgery

We were told yesterday to plan on a Thursday morning surgery. We had planned it all out. The family had all been told. 

About 10 minutes ago we were informed that his surgery has been moved to tomorrow (July 24th) at 7:30am. This really caught me off guard. I knew from 15weeks of pregnancy that my little boy would need open heart surgery but being told that it is less then 24 hours away is a shock. 

Tomorrow morning the cardiovascular surgeons will open up his heart and fix his VSD and the aortic arch. Hopefully after tomorrow he will be on the road to recovery with no more surgeries ahead. 

Please pray for our little man Lincoln.  

Monday, July 22, 2013

Transfer Day

Today was moving day for the little Linc-ster! Early this morning, Lincoln packed up and said goodbye to all the nice people at the University of Utah NICU. He had a nice helping crew who also packed him up in a cute incubator to take him to Primary's Children's Hospital.

 Linc looking around his temporary home to get over to Primary's

Linc got an MRI today to take a look at his brain. Another successful test! He has a good brain!

We've been able to hold our little guy a lot recently, now that he's not being cooled and heavily monitored. He is so stinkin' cute! 

He doesn't open his eyes very often, but when he does, he loves to look at his Daddy and me. 

Dad holding his man-cub.

Today, at Primary's we were told that we could feed him with a bottle instead of feeding tubes. I got pretty excited knowing that I could relish in my hard work pumping. It was amazing feeding my little baby boy. It took him a couple tries to get the sucking and swallowing down, but he ended up guzzling down the tiny amount the nurse let him drink. 

Ryan asked how much babies sleep during the day and the nurse said, "About 20 hours." I guess Ryan thought that was a good idea. Like son, like father.

My favorite thing about today was being able to hold and cuddle my baby for a few hours. It feels so good to have him close.

Sunday, July 21, 2013

It was the Best of times it was the worst of times

Last night was the best night of my life....it was also the worst.

 We had been told that we could hold our baby around 3am July 20th. We were both so excited. After my 3am pumping session we took the milk down to the ICU to store in the freezer, then we got the sad news that they had to wait seven more hours for his monitors to get the correct information before we could hold him. This left us pretty upset because I was scheduled to be released that coming night. All day we held our breathe waiting to see if it had been long enough. We got word that by 10pm that night we could hold Linc. The only problem was we were released at 7pm and I was dead tired from having a sea of visitors come last minute. Lucky for me I married the smartest man ever. He remembered that there are a few over-night beds in the NICU and got one reserved for us. We settled down for a quick nap and woke up just in time to go see Linc. At 10pm they removed most of his head monitors with this awesome stuff that doesn't pull at the baby's skin while they take off the tape. Pretty soon it was time to hold our little Lincoln.

Before taking off the head monitors. Daddy was a little excited ;) 

I got to hold him first. It was a feeling I will treasure forever. Theres something so special about holding all 7 pounds of my child. 

As soon as he settled in my arms he opened his eyes up and just stared at me. All week we've been trying to get a glimpse of his little eyes but he's always been tired when we've come down. Linc's never been fully awake for us. We think he chose the perfect time to show us his little peepers. 

He just stared at me for a good long time. It felt like forever to me, yet it wasn't long enough.
I am so blessed to have such a beautiful baby. 

After I held him for a good time Ryan got his chance. I felt bad but Linc had fallen asleep in my arms so Ryan didn't get any stare-action but we know we have a long time with this fellow.  It won't be long before we're praying for him to close his eyes and let us go to sleep. :)  

My boys! 


BEST MOMENT EVER!


Last night was one of the best moments of my life. It was also one of the hardest. I knew leaving my baby at the hospital would be hard so I was prepared to feel sad. Actually feeling that emotion was tough. Sad doesn't begin to explain it. It was so hard but thankfully I had my dear husband and an amazing nurse to take care of me. Ryan was so good. He let me have my cry and just held me. I am falling more in love with my husband every day since we had this baby.

We also had the most amazing nurse ever, Holly. When she was with Linc you can tell that she loved him. Holly was the night nurse Friday night and last night so we had seen how she worked and felt confident in her ability. When she was taking off the monitors she was so sweet with Linc. Before we left she reassured me that calling every ten minutes was perfectly acceptable. Probably not the best sleep-wise. I ended up calling almost every time I pumped. When we were at the hospital Ryan would run the milk down to the NICU freezer and check up on Linc at home I needed that same reassurance that he was doing ok. Holly never made me feel silly for calling she was very empathetic to how hard it was.

All in all last night was tough but I got through it thanks to good people and the opportunity to hold my baby.

Friday, July 19, 2013

3 Days Old

I just wanted to make a quick note of what has been happening here at the University of Utah Hospital.
  • Tuesday
    • We were induced and Linc was born!
    • Linc was put on the Cooling Treatment Study
  • Wednesday
    • Linc got an EEG to check for seizure symptoms
    • He got off his oxygen ventilator and put in the nose oxygen just to remind him to breathe.
    • Linc got a blessing from Ryan, Grandpa Davidson, Grandpa Woodbury, and Mark.
    • Dr. Edmunds and Dr. Conway explained what happened in the emergency C-section
    • Visitors included: Melanie & Clayne, Darla & Dad, Uncle Mark, Aunt Melissa, Uncle Tyler
  • Thursday
    • The EEG came back normal, so no seizure symptoms
    • Ryan sat in through rounds and heard the doctors report on Linc's progress
    • Dr. Manuck explained what happened in the emergency C-Section
    • Dr. Stiers and Dr. Patel explained what happened in the NICU right after delivery
    • Linc started getting knee bruises from wiggling his bum in the air during tummy time.
    • Visitors included: Melanie & Clayne, Darla & Dad, Grandma Ann
  • Friday
    • Ryan got to lift Linc while they changed his sheets
    • Savanna got to change a diaper
    • Savanna met with the lactation specalist who gave her lots of helpful information
    • Linc opened his eyes for a second
    • They started warming him back up at 9pm
    • Visitors included: Melanie & Clayne, Dad, My Grandma Davidson, Trisa, Sheree, Aunt Rogene, Susie Smith (Relief Society President)
I'm still recovering fairly quickly. I am able to walk around and get up and down from the bed without too much discomfort. My milk has come in which is something that worried me to no end because of the struggle my mom had with breastfeeding.

Tomorrow around 3AM, Linc will be back up to normal baby temperature. We'll get to start doing more things with him (hold him, maybe try to feed him, etc.) Monday he has an MRI scheduled to check brain activity and then he will probably be transferred over to Primary Children's Hospital.





 Ryan wants me to clarify that the purple monitor is not a bow. It's monitoring the oxygen level in his brain. (Oxygen-saturation)
Little Linc 3 days old. 

Thursday, July 18, 2013

Lincoln's Birth: The Doctors' Story

     We told you we would explain more about Link's delivery once we were able to speak to the doctors who were actually there helping Savvy and Link.

     Like we've talked about, Savanna and I arrived at the Hospital around 8AM on July 16. Everything began as planned. Savanna began her pitocin medication to begin contracting. Labor progressed slowly throughout the day with no change in dilation from when she started the day (2 cm). Her cervix continued to efface up to 100% by the afternoon. The contractions and baby's heart beat were monitored all day. Our nurse began to notice a decrease in Lincoln's heart beat around 5:30/5:45PM and asked the doctor if she could break Savanna's bag of water so the nurse could put in an internal monitor to more accurately track the fetal heart beat.

     During the doctor shift change, Savanna's new doctor came in to break her water around 6pm, which she did. The rupture first produced the normal, clear fluid. The nurse, planning on inserting the monitor, continued to notice a significant decrease in fetal blood pressure, as well as, more than a normal amount of blood coming from Savanna. The nurse quickly called for an emergency team to attend to Savanna and Link. They tried different things to find Baby's heartbeat, but it was still untraceable for a few minutes. Any reading that they did get was about half as fast (60-90 bpm) as what they expect for babies (120-150 bpm).

     The doctors moved Savanna into the OR ten minutes after they broke the bag of water. While in the OR, they tried another few things to find Baby's heartbeat. Still untraceable. The reason why Savanna was rushed into the OR was for an emergency C-section. Savanna had obviously been losing blood, and the doctors had suspicions about Link's blood loss, because of his lack of heartbeat.

     Savanna hadn't received an epidural, so the anesthesiologist put her completely under; it was the quickest way to get the Baby delivered. From the time Savanna was put under to Link's delivery was about 60 seconds. In total, from the time Savvy's water broke to the time Lincoln was born was 16 minutes. Emergency FAST!

     Lincoln was delivered at 6:25pm, 7 lbs. 1.5 oz., 20.25 in. He came out not breathing, pale, and his umbilical cord looking empty (not full of blood). The delivery doctors, cut the cord and quickly passed him directly through the window to the NICU. They then closed up Savanna with little complications.

     When Lincoln was passed through the window to the NICU pediatricians (Stiers, Patel, Bernali and others), they immediately cleaned him off and began chest compressions. During chest compressions, they also began him on a ventilator, since he wasn't breathing on his own. His APGAR score (a score that is a universal standard of relative baby health; high score is 10) was zero at 1 minute, 5 minutes, and 10 minutes; meaning, Link wasn't doing anything on his own, but the machines he was hooked to were doing all the work. The doctors rushed about with a number of things in a very short amount of time: placing lines in his umbilical cord to give him medication (epinephrine, prostaglandin), fluid, and blood, continuing chest compressions for 12 or 13 minutes, and giving him oxygen. At 15 minutes, Link's APGAR score was 7. His heart began beating around 12 or 13 minutes after delivery; his lungs began breathing at the same time.

     The doctors were very concerned about Lincoln's loss of blood and lack of oxygen to his organs (hypoxia). They were worried about his brain, heart, kidneys, and liver. He continued breathing with oxygen, but still had a low amount of blood. They first gave him an IV with sugar water to give him more volume, and within about 25 minutes of life, he was given emergency blood. Within 30 minutes, the doctors began a cooling procedure for the hypoxia. The cooling slows the organs down to prevent any further damage, but does not reverse any initial damage. (Kind of like putting ice on a bruise.) He will be cooled for 72 hours.

     The doctors were curious about why this traumatic event happened. All three doctors (Edmunds, Conway, and Manuck) who delivered Lincoln explained to us the problem and drew us pictures. What had happened was the umbilical cord inserted into the membranes surrounding the placenta, then branched out and traveled to the placenta. This is called a villamentous insertion. Normally, the umbilical cord should enter into the placenta somewhere in the middle of the placenta. Obviously Link was receiving nutrients throughout his time in the uterus, but with the rupturing of the bag of water, one of the vessels branching from the umbilical to the placenta was compromised. This most likely happened because the blood vessel was too close to the cervix (this is called vasa previa); therefore, the vessel was disrupted with the rupture of the membranes near the cervix. The disrupted vessel then caused the significant loss of blood pressure to Link, and the emergency C-section.


This umbilical cord defect is very rare. It happens 1 in 3,000+ births. If Savanna would have been home when her water broke Lincoln would not be with us. Even at the hospital with all the staff working quickly he barely made it in time.  Doctors are optimist that this was a one time thing for our family. Other pregnancies and births won't be at risk because of this abnormality. 

     All of this (from breaking Savanna's water, to Link's semi-stable state) took about 25 minutes. The doctors are optimistic about Lincoln's progress and signs of growth. Link is continuously monitored one-to-one; the nurses have been so helpful answering all our questions. Though the doctors are very optimistic about Link's progress and future development, they know he isn't finished with his cooling and his upcoming surgery. He's already been through a lot and he continues to be a trooper through it all.


     We are so grateful for the many wonderful doctors, nurses, assistants, and staff who helped Savanna and Lincoln. We are grateful for our family and friends. We appreciate and feel the great faith and prayers of so many people.

     We are so happy our baby boy is happy and safe right now.

Wednesday, July 17, 2013

Stinky Linky - Dad's version

     July 16 was a day Savanna and I had been looking forward to since last week. We had scheduled an induction for Lincoln and were hoping to get in that day. Luckily, we were admitted into the University of Utah Hospital around 8AM. Savanna started on oxytocin pretty quickly to begin a consistent contraction pattern. She was contracting quite regularly most of the morning and afternoon. None of the contractions had been very painful, so we sat around a lot and walked a little.

     Throughout the day, the doctors had been checking her labor progress. What they found was that she was pretty comfortable at 2cm all day, but effacement continued to increase from 70% in the morning to 100% in the afternoon. During the doctors' first two checks they tried to break Savanna's bag of water, but failed three times.

     About 30 minutes before another doctor check, I told Savanna I needed to eat something and would be right back. The cafeteria was empty, so I didn't feel rushed like the first time I ate. Plus, I was thinking, "This may be a long night. I better stock up!" (Thankfully, I did.) While eating dinner, a mom with her 2 month-old and 2 or 3 year old had a little spill with their drink, so I helped them wipe up and pick up the ice. I then finished my dinner and slowly began to make my way back up to Savanna.

    I opened the door to Savanna's room and noticed a flurry of shoes underneath the privacy curtain. I walked passed the curtain, only to be continued to my chair on the opposite side of the room. Our nurse sat me down and said, "Stay here, we're taking Savanna to have an emergency C-section. Someone will come back to talk to you." While she was telling me this, I heard nurses and doctors report, "I haven't found the heartbeat." "How long?" "Seven minutes." And off they went to the Operating Room. Fast.

     I was left alone for a few minutes before another nurse came in to explain to me a little bit about what was happening. She informed me that our nurse hadn't really been able to find Lincoln's heartbeat, and when she did it was very low. She wanted to insert an internal monitor to get a more accurate reading, but this only could be done after the water was broken. The doctor came in to break Savanna's water, which he did. Our nurse then began trying to place the monitor on the baby's head. Still no reading. She noticed a lot of blood. She then rushed in doctors and nurses which began trying to find the heart beat. That's when I walked in. The nurse who spoke to me explained I may be able to scrub in on the delivery, in which she left to go get me some scrubs. Yet before she got back a doctor came in with news about the delivery.

    The doctor explained to me a little bit more about what had happened. She told me Savanna was doing ok. The anesthesiologist put her completely out for the C-section, with no complications. The reason why they performed the emergency C-section was possibly because of an abruption of the placenta from the uterine wall, meaning, the placenta broke off the uterine wall before it was supposed to. This caused a loss of blood to baby and Savanna. The doctor then said that the Newborn Intensive Care Unit now has him and were putting IVs and other lines and tubes into him. But she really didn't tell me anything else.

     I then began calling our parents to tell them the news that our baby boy had been born, nearly breaking down on both calls. I was in a stupor. While I was talking to Ron, two more doctors came in to update me a little more about baby. They said I had to wait to see Savanna and baby, but both were doing all right. Again, hit by a wave of information confirming what I had just been told, I uttered to Ron that his grandson had been born and Savanna's doing all right, but that I was alone. He asked, "Do you want us to come up?" "Yes," I muttered. I then called my parents, explaining to them the same thing. They could tell I was nearly in shock, and asked as well, "Can we come up?" "YES!" I desperately exclaimed.

     Still alone.

     I had another doctor introduce himself as the attending neonatalogist. He then explained a little more about what happened: They hadn't been able to find baby's heart beat for 7 minutes inside the womb. After they pulled him out, he didn't have a pulse or a heart beat, he was very pale. They performed CPR for 12 or 13 minutes before they were able to revive the baby. Because of such a traumatic experience, they were (and are) still worried about any long-term brain damage. This lack of oxygen to the brain and other organs is called hypoxia. Because of this hypoxia, he was placed on a cooling bed in the NICU. The cooling bed has been found to significantly decrease, or at least minimize any brain damage. Protocol instructs babies suffering from hypoxia will be kept on the cooling bed for 72 hours. So that means little man will be chillin' (literally) in the NICU for a while. As the doctor explained this to me, I was still soaking it all in, not really controlling my "what if" or "just tell me how bad it is now!" thoughts, but containing them to myself. No body really knew that and they still aren't completely sure now about any damage.

     One of the doctors who had already spoke to me entered the room again. She explained a little more about baby's status. Lincoln (who hadn't been named yet) had been placed on the cooling pad and was doing well. Other doctors were finishing putting an IV and lines for a blood transfusion and some medicine for his heart. Lincoln was hooked up to a ventilator and oxygen as well. She told me I could come into to see him. "Would you like to do that?" "Yes, please." I noticed after every doctor had gave me their news and updates, I just said, "Thank you. Thank you." Not really knowing what else to say. They whisked me into the NICU and I was able to wash up and touch my baby boy! This was only after the doctors had placed the lines and checked them with an X-ray. Lincoln was pretty stable for what he had gone through. As the doctors were finishing up with Lincoln, another nurse or doctor was explaining everything that was going on and then invited me to touch him. Everyone was asking what his name was, "We're still deciding." or "I need to talk to my wife." While in the NICU, I learned a little more about the possible problem that occurred. The umbilical cord may have not been connected to the placenta in the correct location (normally smack dab in the middle of the disk-like lifegiver). What they theorized was that the umbilical was connected to the placenta closer to the edge of the placenta, therefore, also connecting to the bag of water, so when the bag of water was rupturing, so did a few blood vessels, which caused an alarming decrease in Link's blood pressure. The rupturing of waters also jolted the placenta enough that it abrupted and broke off the uterine wall too soon.

     When I came up to him, in his fragile state, I felt so much love for him. I prayed with him and for him and blessed him. In that slightly hectic rush of doctors and nurses, I felt that he would be comforted that many hands, seen and unseen, were protecting and nurturing him. I was told Savanna and my family were back in our room. I said goodbye to my baby and returned to my wife and family.

     One of the doctors came with me to explain what had happened. Savanna was still a little groggy from her general anesthesia, but she was quite aware of the story and asked some good questions. The doctor was pretty vague with Savanna and the family. I had heard the story a number of times and this one was not full. The family and doctor then left us alone to decide on a name. I showed her a couple pictures of our cute baby boy. I know she was groggy, but I felt pretty good about Ryan Lincoln Woodbury. She consented.

     I then was able to visit Lincoln again with one family member at a time. Ron was first. His first grandson. Darla was next. Her first grandson. Both were excited and speechless. I was then told by the nurse that more babies were expected to arrive at the NICU, and therefore, no non-patients were allowed in the NICU, so to get the rest of the visitors in. My parents came in and took some pictures. Then Mark, my brother, came to visit his nephew. We were all so happy to see him. After they left, I could stay because they said that Savvy was coming in to see her son for the first time! She was still a little drugged, but she was so happy to see her baby boy, Lincoln. The nurse was able to lift him up a little for her to see. Her smile ran from ear to ear when she saw her little baby boy. We then left for her recovery room.

     Our families left, so we had some time alone. Savanna was still in a lot of pain, but was a trooper and was able to begin taking oral medication (instead of an IV drip) pretty soon. We both slept quite well that first night. I slept the whole night even while Savanna was getting checked and monitored by the nurses. The nurses got her up in the early morning for her to walk around. She was able to go see Link again. She said she tried to wake me up, but I was out. She told me she was able to touch him for the first time. She was much more aware of what was going on compared to the time they rolled her in after she woke up from surgery.

     The next day was another long day, but we kept ourselves pretty busy. The nurse had some orders for Savanna to follow and we happily had visitors. Our families came to say Hello to Link again. Melissa and Tyler got to see their nephew for the first time. Everyone thinks he's a good looking kid. While my family was here, some nurses were hooking Link up for an EEG to test for unusual brain activity and seizures. (No word on that yet, but they just think he's shivering from the cold, and the EEG is protocol.) We had the Labor and Delivery doctors come in and speak with us about what exactly happened last night with the birth. These two doctors were very genuine and prepared for our questions. They weren't afraid to use medical terms (which Savanna wrote down). They also drew us pictures of what they found had happened. They were both extremely helpful and informative. (More to come on the exact medical story.) Later that night, we had another family visit, this time, we were able to give Link a blessing. My dad anointed. I, then, lightly placed my finger on him, while the others placed their hands on mine. A pure blessing was given.

     Savanna and I now are getting a routine with nurses checking her or bringing in pain meds. She's been walking and pumping and breathing and keeping everything slowly moving, so her body will safely recover. We are both extremely grateful for the many hands, seen and unseen, who have be caring after Lincoln. We appreciate the faith and prayers of our family and friends. We will continue to keep as up to date as we can.

     Here are a few pictures.
I was pretty excited. They said, if everything was normal, I could cut the cord! That didn't happen though.



Here he is with Momma's hand on him. That thing in his nose is a thermometer. He's been able to breathe completely on his own. He really likes to sleep right now.
He ended up having 26 electrode connected to his body (mostly on his head) to test for unusual brain activity. EEG.

There's Momma and Baby bonding. I love them!